Beyond Achondroplasia

Growing together with Clara


  1. I have a grand-daughter who has achondroplasia. I studied a lot of literature before but found some new information on your web-site. Thank you!

  2. Thank you for this very informative website. We have a 4 year old girl with Achon. We are very interested in the Biomarin trial.
    The story of Clara is very like our story.

  3. This may be a long shot here, but I cannot find any information on my question. If a child has had growth hormone treatment in the past, will they still be able to take one of the drugs in the clinical trials if/once they become available? Or does taking the growth hormone make that not an option in the future.

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