Beyond Achondroplasia

Growing together with Clara

LP Doc talk – About BMN-111

| 3 Comments

 

Growing Stronger provides LP Doc talk, a series of online, live conversations with world-leading doctors and other experts focused on dwarfism. You can join live online for each session or visit the archived recordings anytime thereafter. This is a extremely valuable project from Growing Stronger and gives clear and useful information to all interested.

LP Doc Talk on the 8th May, 7:30PM Est (New York time) presents:

ravi_and_samProfessor Ravi Savarirayan MD (Melb.), BS (Adel.), FRACP, ARCPA (Hon.) (Consultant Clinical Geneticist, VCGS I Group Leader, Musculoskeletal Research, MCRI I Professorial Fellow, University of Melbourne) will answer your questions on the trial drug BioMarin’s BMN-111 for Achondroplasia.

To submit questions:

Please register and ask questions on the page link. You will get an email with details on how to join the live online call.  Complete the form to submit questions for the next LP Doc Talk.

3 Comments

  1. Hi,
    I read that vasoritide (BMN111) will be available in pharmacy in year 2020?
    Do you think my son genetics doctor can have access to it through his clinic sooner than 2020?
    Thank you,
    Francesca

    • Dear Francesca,

      Although there may be prediction of time, when Vosoritide will be available is not defined at this stage.

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