Beyond Achondroplasia

Growing together with Clara

January 26, 2017
by inesp.alves
2 Comments

Accelerating bone formation during limb lengthening

Currently, we stand in a great moment of drug development for achondroplasia with one drug in clinical trial, that just started phase 3 (Vosoritide) and another one, the TA-46, that maybe will start clinical trial phase 1 soon. And there … Continue reading

January 28, 2016
by inesp.alves
0 comments

More about the PRECICE Internal Lengthening Rod

An interesting video, posted at the Limb Lengthening and reconstruction society website, about how the PRECICE nail works. Always good to have valid information to contemplate.

March 25, 2015
by inesp.alves
1 Comment

One day of Lucas

Lucas is a 12 years old spanish boy who is crossing the lengthening process. This is a short film about one of his days. He is brave. He makes others feel braver… No need of translation.   Some words from … Continue reading

January 11, 2015
by inesp.alves
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Clinical outcome of lower limb lengthening

This recent publication : “The etiology of short stature affects the clinical outcome of lower limb lengthening using external fixation“, by  S.Kim et al, Department of Orthopaedics, New Jersey Medical School, published in March 2014, the authors made a systematic review … Continue reading

October 17, 2014
by inesp.alves
2 Comments

Achondroplasia highlights

During three full days, the V International Congress around Achondroplasia and other Skeletal Dysplasia took place in the north of Spain, very well-organized by Alpe Foundation. Several world-renowned experts attended, giving one or more lectures, over 500 people registered, mainly parents … Continue reading

July 24, 2014
by inesp.alves
1 Comment

The long way up

Rarely I´ve mentioned here the hard and slow road of limb lenghtening. My first research on achondroplasia was at the day we received the genetic report confirming Clara had achondroplasia. Some moments get engraved in our memories in the hardest … Continue reading

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