Beyond Achondroplasia

Growing together with Clara

July 31, 2017
by inesp.alves
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Exercises and postural education for children with achondroplasia – OSCAR 2016

In 2014, several Reference Centers in France dedicated to diseases involving the same organs, created OSCAR, the French network of rare diseases of bone, calcium, and cartilage. Citing Dr. Geneviève Baujat (Necker-Enfants Malades hospital, Paris) “The aims are to expose … Continue reading

May 23, 2016
by inesp.alves
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Osteopathy proposal for prevention of otitis media in achondroplasia

Mauro Banfi is a physiotherapist who also has a degree in osteopathy, from the College Osteopathique de Provence – Marseille, France. I meet him recently during the AISAC congress. AISAC is the Italian Association for the Information and Study of Achondroplasia. In this … Continue reading

September 21, 2015
by inesp.alves
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Lying to sitting to standing up in achondroplasia

Children with achondroplasia usually have strategies to pass by different phases of gross motor skills acquisition. In the article “Development in children with achondroplasia: a prospective clinical cohort study” Ireland, P. J., Donaghey, S., McGill, J., Zankl, A., Ware, R. S., … Continue reading

May 7, 2015
by inesp.alves
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Physiotherapy for achondroplasia

In this YouTube link, powered by Fundación ALPE achondroplasia, there is a list of videos for postural and motor work development, for babies and children with achondroplasia. Although the titles are in spanish, they are easy to follow in a … Continue reading

January 12, 2015
by inesp.alves
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Active play

Pushing a doll stroller its one of the latest physical therapy exercises Clara does with her therapist and she really enjoy it. Now she has her own doll stroller and she plays with it a lot. “Pushing toys provide a … Continue reading

June 24, 2014
by inesp.alves
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Physical rehabilitation update

Yesterday, Clara had another appointment with her physiatrist. Four months after the last appointment, her physiatrist doctor found that Clara developed better protective reflexes and her whole locomotion structure was greatly improved. The doctor report had the following observations: -21 months-old baby -Slight … Continue reading

June 5, 2014
by inesp.alves
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Hydrotherapy in achondroplasia

NAVARRO et al. (2006) published the article “Use of hydrotherapy in the socialization and prevention of complications in children with achondroplasia“. This was a report of the use of hydrotherapy, twice week for 1 month, as a treatment for a 3-year-old child with achondroplasia … Continue reading

March 22, 2014
by inesp.alves
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Physical therapy to improve muscle tone and strenght

In continuity with the latest post, the Baltimore corset, the physiatrist doctor indicated specific physical therapy stimulation exercises, but any child with achondroplasia can ou should have this physical stimulation. exercises The physical therapy stimulation program works to improve the tone and … Continue reading

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