Beyond Achondroplasia

Growing together with Clara

August 30, 2015
by inesp.alves
1 Comment

Sleep study – annual control

Last 28th July, Clara did her fifth sleep study. She was 35 months-old. This exam was done with video monitoring. She was excited to sleep that night at the hospital. But it was a quite tiring night. It was a hot … Continue reading

August 17, 2014
by inesp.alves
1 Comment

Neurologic signs of cervico-medullary compression

Lately, I´ve knew about other children with Clara´s age and with achondroplasia that had to undergone emergency cervico-medullary decompression surgery. I know also that some parents observe strange signs in their children without recognizing them to be neurologic alterations. I … Continue reading

May 6, 2014
by inesp.alves
1 Comment

Sleep study and misleading medical report

Some medical reports can give us misleading results. So, during this path, I have confirmed once more how important is to be alert and have a critical spirit to analyze the information provided to us by doctors. And if someone don´t feel in a … Continue reading

April 7, 2014
by inesp.alves
0 comments

Overnight sleep study – level 1

A sleep study type 1 is a painless test done in a sleep center of hospital that records the brain waves, heart beat, and breathing during sleep. It also records eye and leg movements as well as muscle tension. It … Continue reading

October 10, 2013
by inesp.alves
0 comments

Sleep apnea – new reviews

Searching about this very common theme around parents, but not that well understood, I found a recent article publish at the Journal of clinical sleep medicine, that has very explicit points about the subject. A Three-Month-Old Achondroplastic Baby with both Obstructive Apneas … Continue reading

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